Category Archives: Caregiver — For those involved in caregiving

Caregiver Toolbox: Patience

Winter took another swipe at our happiness this week. Instead of counting robins on the first day of spring, I was shoveling snow. There were many traffic accidents near our home, and not for lack of preparation. Drivers have simply run out of patience. If you’re a caregiver, you know that’s a big mistake.

Between the Pond and the Woods

Everything about dementia forces you to learn patience — panic attacks, toileting, repetitious chatter. Adding patience to your toolbox really enhances your ability to provide care. The first time I took care of my mom — in the early stage of the disease — I was a total failure in the patience department. I was often frustrated by Mom’s slowness or her repetitive behaviors. My lifestyle was built on speed, not steadiness, and I found it hard to slow down.

At this stage of caregiving, I feel like the disease has re-shaped my attitude toward almost all of my mother’s behaviors. I used to cringe and wring my hands when she would grind her teeth (is anything more annoying?) But this morning, I stood beside her and massaged her shoulders and jaws until I could get her to relax, rest and stop. She hasn’t changed, something inside me is different. Meditation helps a lot. Opening your heart helps even more.

There have been many occasions over the past few weeks, when snowstorms kept family members and aides away from our house. That put on me duty for feeding my mom, which takes a very long time. This often forced me to shave my work hours. At first I felt so frustrated I wanted to shout. Somewhere in the process, I realized that the day will come when she isn’t here to share meals with me. I decided that I had to find the patience to feel the contentment that comes with feeding someone you love. It’s a decision that helped me do better by mom — and get more meaning from the caregiver experience.

Which aspects of care are the most frustrating for you? Which dementia behaviors force you to find the extra helping of patience that seems beyond your grasp? If you can identify the things that are most trying, you will also discover new opportunities learn from the disease and add something else to your toolbox. These challenges are not fun. But I do believe they make us stronger.

Caregivers Using Art to Understand Dementia

When caregivers are stuck indoors, it’s helpful to have a creative hobby. You need something to do during snowstorms, heat waves, or periods when your loved one is confined to bed. The written word is my creative vehicle. But I admire the ways that other use their artistic skills to transform dementia into works of art that transcend their pain.

Between the Pond and the Woods

In the past I’ve written for a site called Making Sense of Alzheimer’s. It serves as a portal with links to creative projects that wring meaning from experiences related to the disease. The site recently added a video that explains the beautiful illustration work of a British artist named Ruth Blackford. Ruth’s mother, a textile designer, was diagnosed with Alzheimer’s in 1999. Ruth combined some of her mother’s work with visual art concepts to create the amazing work shown in this video.

I really enjoyed listening to Ruth’s explanation of how her art helped her gain a deeper understanding of her mother’s experience of having Alzheimer’s. Her comments made me wonder about the creative projects other readers get involved in to help deal with the stresses of caregiving, or the impact the disease has on loved ones. If you have a special project going, please write in and tell us something about your work. If there’s anything you’d like to share on the Making Sense of Alzheimer’s site, send me a message here.