Category Archives: Caregiver — For those involved in caregiving

When Dementia Steals Language, A Touch Speaks Volumes

Once a person with dementia loses their language capacity, you need new ways to communicate. I still talk to my mom. But she can seldom answer me. Lately, I’ve been using touch to keep her connected, so I decided to do some research on the effects of massage.

Between the Pond and the Woods

Massages have been part of our family habits for a long time. Years ago, my mom, sister and I decided to stop buying Christmas gifts. Instead we set aside a time when we would go to a day-spa. Each of us got a massage, then we went out to dinner or to a show. The idea was: Have fun together, instead of buying each other stuff we didn’t need. Now, as Mom’s condition has declined, I’ve started massaging her hands or her earlobes gently. I ask her if she likes it and she just laughs, which seems like a good sign.

Although it’s hard to find research, plenty of people think that massage is helpful to people with dementia. The University of Maryland Health Center says, “People with Alzheimer’s disease become frustrated and anxious because they cannot communicate well with language. Using touch, or massage, as nonverbal communication may help. ” They quote a study claiming that people with Alzheimer’s who got hand massages — and were spoken to in a calming manner — had lower pulse rates and didn’t engage in as much inappropriate behavior. The also mention that “health care professionals think that massage may help not only because it is relaxing, but because it provides a form of social interaction.”

The Alzheimer’s Society (in England) says, “There is much anecdotal evidence that massage can help manage symptoms associated with dementia such as anxiety, agitation and depression, but studies have not been sufficiently rigorous to provide solid proof. It does seem likely that massage interventions may well be beneficial, but further research is required.”

Even in the absence of scientific proof, massage seems like the kind of thing that would soothe a body in great distress (heaven knows, it works for me!) I found an article in Massage Today written by Ann Catlin, a Licensed Massage Therapist, that helped me understand why that might be true. Ms. Catlin looks at a person with Alzheimer’s from the perspective of Abraham Maslow’s Hierarchy of Needs. I remember learning Maslow’s Hierarchy in college, but I never thought about my mom’s disease in this light. According to Maslow, all humans have the following needs:

1) Biological and Physiological needs – air, food, drink, shelter, warmth, sleep, etc.; 2) Safety needs – protection from elements, security, order, law, stability, etc.; 3) Love and belongingness needs – friendship, intimacy, affection and love, from different sources; 4) Esteem needs – self-esteem, achievement, mastery, independence, status, dominance, prestige, managerial responsibility, etc.; 5) Cognitive needs – knowledge, meaning, etc.; 6) Aesthetic needs – appreciation and search for beauty, balance, form, etc.; 7) Self-Actualization needs – realizing personal potential, self-fulfillment, seeking personal growth and peak experiences; and 8) Transcendence needs – helping others to achieve self actualization.

Ms. Catlin believes massage has the capacity to meet certain aspects of all these needs. She notes, “Massage therapists can bring a unique perspective to the care of elders living with Alzheimer’s disease by highlighting the role of compassionate human touch in satisfying human needs on all levels.”

Her article offers many more details about how massage can help dementia patients. I appreciate her perspective because it seems to grow from professional wisdom. And regardless of what it does for the patient, giving little massages to my mom meets some part of my own hierarchy of needs. I long to know that she can still sense how much I love her. If a touch can transmit that message, it’s very powerful medicine.

Alzheimer’s: It Steals Heroes as well as Memories

I’m on auto-pilot too much, tackling one problem after another. The radio is my constant companion. But I realized this week that I don’t listen to my friend as well as I thought. Turns out that Car Talk has been playing in reruns for two years! That’s because one of the hilarious Tappet brothers had been suffering from Alzheimer’s Disease. Me? I never noticed a thing.

Between the Pond and the Woods

When you have stress in your life, as most of us do, you’ve got to find some humor in the big mess. I always loved listening to the banter of Click and Clack, the Tappet Brothers, on Saturdays as I did my errands. They gave wacky (but often correct) advice to the bewildered owners of problem cars.  Both brothers were funny, but the owner of the million dollar laugh was Tom Magliozzi, who passed away last week at the age of 77. Alzheimer’s was the culprit that brought his laughter to a halt and ended a great partnership between two fiercely funny brothers.

It was their laughing and their thick Boston accents that pulled me in. I’m not a big car fanatic, but their chats about the sounds and problems of malfunctioning autos made the show very entertaining. They came off as grease monkeys, but both Magliozzi brothers actually graduated from MIT.  They even delivered the MIT commencement address (together) in 1999.

Tom got involved with radio after a having a near fatal run in with a tractor trailer. He’d spent a couple of years trying to figure out how to create a life that was richer in meaning. Radio gave him an opportunity to combine his knowledge of mechanics and engineering with the power of his big, joyful personality — and he got to work with his brother, too!

It didn’t take long for the show to find fans. In a recent NPR article, the show’s producer, Don Berman, said Tom’s laugh ” was loud, it was constant, it was infectious.” Berman said, “I’d just hear this laughter, and then there’d be more of it, and people would sort of gather around him. He was just kind of a magnet.”

There’s something heroic about people who can make you laugh so much. You never forget them or the joy they bring to you. Unfortunately, it turns out that Tom suffered from the forgetting disease. Alzheimer’s stole his laugh and his knowledge, and left behind a brother who must feel his absence keenly.

If you’ve never heard the Car Talk show and you need a good laugh, listen to this tribute program which captured some of their funnier moments. It is guaranteed to shift your mood to higher plane. Good bye to one of the world’s bright lights! Tom Magliozzi will be sorely missed.