Tag Archives: caregivers on Mother’s Day

Don’t Let Dementia Steal Mother’s Day

Don’t let dementia steal Mother’s Day from your family. That #mother-child bond is sacred, no matter what’s happened in the years since your birth. For the past 11 years, I’ve had to remind myself of this on every #Mother’s Day. Though not fully present, my Mom is still here and I’m grateful for the life she gave me.

Dementia Steal Mother's Day

Being deeply loved by someone gives you strength, while loving someone deeply gives you courage.
by Lao Tzu

She was always tiny and cute in her whirling skirts and pixie hair cuts. My mom was a good cook but a better dancer. Although she made a mean roast beef, she was happier doing the jitter bug. My parents didn’t always get along, but they found harmony swinging through space on any dance floor. Tall, handsome dad turning pretty little mom on the fulcrum of her high-heeled shoes. Sparkly earrings on a Saturday night with the Dorsey Brothers, Sam Cooke, Doris Day, or Motown. She could dance to it all.

My mother had a lot of rules and her two daughters tried to follow them. A strange authority emanated from her small body. When we made her mad, she cried as she scolded us. The sight of her tears was far worse punishment than an afternoon stuck in our rooms.

Her greatest teachings focused on work ethic. Though she delivered forty weekly hours of effort to her boss, Mom still came home eager to tame an unruly household. Laundry, housecleaning, financial management — she excelled at all of it. Her performance standards were high. My sister and I absorbed that.

Can #Dementia Steal Mother’s day?

I feel that Mom’s efficiency must have cost her something. At what point does #dementia sneak in? How does it find you? Why does it pursue you so slowly, so relentlessly? The disease raises a hundred unanswerable questions. But it’s taught me at least one thing: While dementia may erase their memories, it has no claim on yours. As long as a mother is alive — and well after she’s left this earthly plane — you can commit yourself to cherishing the things you value about them. You can remember who they were and what they did to plant you in this world of boundless possibility.

I have to finish here and cry a while before I go to observe Mother’s Day with my mom. She’s tinier than ever, folded like a paper doll into a giant, deluxe wheelchair. Now I call her my Origami Mommy. She’s cute as ever, nearly silent, yet somehow still aware of the charm she exerts in this world. God bless her and all the mothers silenced by dementia and other grave illnesses. May we all draw solace from the gifts they gave us so long ago.

For Caregivers on Mother’s Day

For caregivers on Mother’s Day: Is role reversal is part of your life? My relationship with my mom has flipped around many times. Last year on Mother’s Day, I felt like we were on the Titanic ready to capsize. Mom was weak, then strong, then frail again. But she’s lived to see another Mother’s Day. Wow!

For caregivers on Mother's Day

The two of us have taken a beating as her dementia has progressed. If I didn’t remind Mom about her daughters, she might not know that she had any. One of my shoulders has been dislocated several times and my back feels like it belongs to an old lady. (Maybe I’ve become one!) Mom can’t talk or walk and she can barely stand up even with two people supporting her. But she ate the Mother’s Day brunch I cooked for her and still savored the taste of her favorite foods. Despite her lack of language she managed to express her pleasure through laughter and the smile that never quits.

I’m so happy that we had the chance to do this again. Some days are so hard for her. She gets weird electric shocks that frighten her and scare me, too. When it’s rainy, she seems to sleep through everything but meal time. On many occasions, I could have sworn that we were sharing our last dinner together. Then she somehow finds the strength to revive and I think, “All right, the seas are calm. This voyage will continue.”

It is probably easier to pick a Kentucky Derby winner than it is to predict the course of dementia. We’ve been given time estimates, symptom warnings and lots of family education to help us get through this long process. The only thing that really stays consistent is the deep love we feel for my mom. I used to think that love was mysterious and fragile. But as we celebrate one more miraculous Mother’s Day, I see that love is tough and durable. It is more reliable than a diagnosis and more potent than medicine. It’s a bewildering experience to serve as the caregiver for a parent. When it feels too confusing, love is the only true compass.