Tag Archives: dementia home care

Professionals Who Go the Extra Mile — Adult Day Services for the Elderly

Taking care of a person with dementia requires a degree of patience I did not know I had. For years my world revolved around writing assignments and deadlines. It’s a career that requires perseverance and self-discipline. Ten years of freelancing for national clients convinced me that I was pretty good at it. But everything changed when my mom moved in. I felt clueless and overwhelmed. The transition was hard for both of us. Once I found the incredible people at the Adult Day program in our county, managing my work and her care became much easier.

Until Mom moved in with me, I had never heard of Adult Day Care. To me, the name sounded belittling, and I was careful not to say “day care” around my mom. No matter what stage of dementia someone has reached, you’ve got to show respect for who they are.

We are lucky to live in a county with a great Adult Day Service Center which is operated by Blue Mountain Health System. I interviewed Roxanne Downs, the director of the program to get more details about how services are organized. Although the program is located in Carbon County, this Palmerton site also has contracts with Monroe and Lehigh Counties which can refer clients who need services.

Ms. Downs feels that current services for seniors in Carbon County are well managed and located in sites that are accessible for most people. The aging population in our county is growing,  just as it is in the rest of Pennsylvania. But Roxanne feels that the county — like most others — is not financially prepared for the growing wave of elderly people.

Like most Adult Day sites, her center focuses on taking good care of their elderly participants. To do this, they work closely with their families. The center has a caregiver support group that meets regularly to discuss topics of interest to family caregivers. Past sessions have covered elder care law, the nature of Parkinson’s Disease, and trends in gerontology. Staff members at the site interview the elder’s primary caregiver every six months to adjust each elder’s care plan. The program operates on a medical model which helps identify and address health issues together with families.

Apart from meticulous daily care, the center offers handicapped accessible showers for people who have limited accessibility at home. They have a nurse on staff who can do blood work on site. This reduces the family burden of making appointment for ongoing labwork. A hairdresser is there offering weekly cuts for elders. Occupational and speech therapy can also be arranged on site.

I love the people who work there because they have been so good to my mom. Whenever any issue comes up, I get a phone call immediately and we create solutions together. Every day I am thankful for the kind attention they have given my mom and I am certain that their activities have helped my mom retain some abilities despite the progression of her disease. If you need this kind of support so you can work full-time and still care for a family member, the links on the front page will guide you to similar programs around the state of Pennsylvania. My December article in the Journal Newspapers also provides more details about elder programs in the Pocono region.

If your county doesn’t have a program like this, it may be time to become an advocate for launching one. You can begin by calling your Area Agency on Aging — and follow up with a call to your state legislator. Don’t be afraid to ask for what you really need. The elders in our community deserve the kind of support they once offered to us.

Music, Memory, and Dementia

Over the years I’ve heard some great stories about music’s power to help dementia patients communicate. A friend who does music therapy once sang a spiritual to an African American patient who hadn’t spoken in months. To her surprise, the woman stood up and started talking. Another professional caregiver told our support group how she used a Christmas carol to help a mute dementia patient sing again.

Music seems to be one of the last skills stolen by the disease. Adding song to the care routine may be helpful. Our family has always been very musical. My dad was a well-known singer in our community. Both my sister and I sang in the church choir and played the piano. Mom, however, was usually too shy to let her voice be heard. Yet somehow, over the past few years, that situation has changed.

One night last winter, I was driving my mother to Philadelphia to visit my sister. It was windy and cold and Christmas carols dominated the radio. Suddenly, Mom began to sing along in this operatic voice I’d never heard before. It wasn’t exactly Maria Callas, but she stayed on key the whole time (a real achievement for mom) and she remembered all the words.

Since then I’ve made sure to include music as part of our daily routine. When she eats breakfast, I play the classical station. Later in the day, I switch to rock and roll. Sometimes we’re inspired to dance. Right now we’re in the carol mode. Today a friend sent a link to this article about The Unforgettables, a chorus in New York that unites dementia patients and their caregivers in song. Check  out their story. It may inspire you to sing more during this season of music, memories, and small miracles.